lizcrawford

Liz Crawford

Biography

Liz Crawford has many titles, although her favourite is likely Mom (of two), otherwise she is best known as: CEO, Philanthropist, PR, Marketing and style expert, on air personality, editor-in-chief, and the list goes on. After her youngest child Malachi was born with Hirschsprung’s disease in 2008. Liz became involved with the Hirschsprung’s Charitable Organization called REACH . After launching the social media site for the Hirschsprung’s Community, a support forum for families living with HD she began on a research journey with the Manitoba institute of child health pertaining to the relationship online communities have through discourse, support, and advocacy to connecting families of those affected with rare health-related conditions. The study of the HD campaign demonstrated both reach and responsiveness of a community identifying the most important information related to caring for a child with HD. Liz has since been involved with various medical panels and events as she continues to be invited to join a growing number of Hirschsprung’s boards or committees across both Canada and the U.S. Her work in the community over the years has also garnered her the admiration of many as she gives back just as much as she’s been fortunate to gain.

Discipline: Patient Partner

Centre: University of Manitoba

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